Archive for April, 2008

Don Bowen Update: 2008-04-30

April 30, 2008

Yesterday was repairman day at our house. First the Best Buy technician came to look at our TV in the basement that I have waited 2 years to call and get fixed. It had problems with the jacks right away and I was sure it was the TV, but just never exercised the warranty - one of the few I’ve ever purchased. Fortunately he confirmed that it was the jack panel. He called later that night to tell me that it was cheaper to have us go get a new TV than to repair ours for $2200!. Long story short we ended up with a better version of the same TV and a new 4-year warranty thanks to Matt.

The AT&T repairman also came by because I had static on my work phone. He had literally 20 reasons why there was no way he could fix it. The first was because we have cordless phones. I asked him, “What other kind of phones do people have?” :-) He was no help at all and just wasted a bunch of my time. When will Best Buy start doing phones? :-)

I was more anxious about this MRI than those in the past. I wanted it done on the same machine as all the other times, but it wasn’t possible. It was actually done in a mobile unit, but I was assured that it had the latest software, which I was happy to hear.

I made the mistake of laying down and thinking my head was cushioned. It wasn’t. I did fine for the first 15 minutes, but then the sharp pain on the incision started and made the second half tough. I think you get more familiar with pain, just never comfortable with it.

I’m not excited about my new sleep aid trazadone. Took it for the second time last night and had one of my worst nights. If I have the same experience tonight I’m done taking it.

Today was a long day, mostly because we spent four hours at an eye specialist who ran more tests on my eyes than I’ve had in the past 30 years - I’m not kidding. The main reason I went was for a field vision test. The machine was incredible and I did much better.

You can really tell that the left side of both eyes is severely impacted. The left eye a bit more than the right. Not sure what that little blind spot is on the right side of my right eye. Maybe I was just distracted.

I don’t want to alarm anyone, but he told me that I can drive. I even heard him dictate it for the official record. He also said, “You can’t see small things on your left, but you can see a big bus.” Now I’m not encouraging you to start taking public transportation, just telling you what the expert said.

Can’t remember the last time I had my eyes dilated. My eyes are still sore and watering even now, but at least I got some very cool sunglasses out of the deal!

While I was waiting at the eye doctor my friend Tim called and told me that the preliminary MRI results were good. Once again the news was emotional and very encouraging. I told Dr. Kattah that I had an MRI yesterday and he actually pulled it up on his computer right in front of us. He confirmed that is sounded very positive and then actually looked at the pictures. “It looks very small”. Praise God! I hope to get official news from Dr. Geoffroy and/or Duke tomorrow. Thank you for your prayers.

Tomorrow I do my blood and liver work to determine if I can start my second round of temodar, which I hope to start Friday. The timing is tricky. I have to do my tests early in the morning, fax them to Duke, get their go ahead and have them order the temodar so it can be shipped to me by Friday. Please pray for this to happen and for no side effects this time, especially the nausea.

If you detected weariness and fatigue in my past few updates you would be reading between the lines correctly. I knew and I said this was going to be a long journey. I guess the pain of the past three weeks has made it a bit harder than I thought. I’ve had to spend way too much time resting with my eyes closed and it can be dark and lonely. But I know you guys are with me. I feel your prayers and I get your encouraging notes.

“So Joshua fought the Amalekites as Moses had ordered, and Moses, Aaron and Hur went to the top of the hill. As long as Moses held up his hands, the Israelites were winning, but whenever he lowered his hands, the Amalekites were winning. When Moses’ hands grew tired, they took a stone and put it under him and he sat on it. Aaron and Hur held his hands up—one on one side, one on the other—so that his hands remained steady till sunset. So Joshua overcame the Amalekite army with the sword.” (Exodus 17:10-13)

You are my Aaron and Hur. Thank you!

I need a miracle, God specializes in them, pray BIG!

links for 2008-04-30

April 29, 2008

Don Bowen Update: 2008-04-28

April 28, 2008

Friday was a long day and I didn’t feel well for most of it. I decided late to walk outside and Eileen wasn’t happy with me taking the “dangerous” route without Megan :-) Not sure how I missed it the other two times, but there is a sidewalk in plain sight on the LEFT (where I can’t see). So now I have a safe route.

That evening Eileen and I got to go out with our friends Dan and Sherie, to get pie. Pie can make everything better. Well, almost.

I always get banana cream, but for some reason decided to go with cherry. I won’t make that mistake again. I like mine tart the way my mom makes it. Even the scoop of ice cream didn’t help. However, the company made up for it. I laughed out loud for the first time in a while when we discussed my upcoming first flight since my surgery and what it might do to my head. Sherie suggested that I wear an astronaut helmet and picturing that really made me laugh. Thanks for the evening and the laughs, guys!

So they won’t be adding “M.D.” to the end of my name any time soon. The move to 4mg of decadron didn’t do much of anything, best as I could tell. So, I made the decision to back down starting on Saturday. The side effects of decadron are just not worth if there is no relief.  Saturday was a long day.

Saturday night we watched “Game Plan”, which was cute, but pretty much what I expected with “The Rock” as the lead actor. It was more for Lauren and she liked it- for the second time.

Sunday I got a good walk in on the treadmill before church and actually felt ok before noon. However, by early afternoon the eye pressure was really a problem. We went to lunch with our friends John and Susie and I can only imagine that they felt like Dan and Sherie, watching me apply pressure to different parts of my head while carrying on a conversation. Here is what it looks like:

I know it isn’t a pretty sight, but what can I say, the pressure makes it feel better for some reason. Fortunately I have good friends that cut me slack :-)

I rested the remainder of Sunday afternoon, but since I can’t sleep I listened to the EDS Byron Nelson golf tournament. When it got to the end I got up and watched the finish and tie-breaker. It was a great distraction for me and the final putt was really something.

On Friday I had asked my doctor to prescribe a new sleep aid. I’ve been taking ambien since surgery and it just isn’t working. The past several nights I took two Tylenol PM and an ambien only to sleep for a little over an hour! The doctor called it into Walgreen’s and we went to pick it up Friday night. Can’t tell you how disappointed I was when it wasn’t there. I called my doctor and he said I’d have to wait until Monday. Arggghh! Fast forward to today and I have them call it in - again. Eileen goes to pick it up and it isn’t there - again. Not sure how that happens. Supposedly the pharmacist at Walgreen’s is busy so the prescription is left on voice mail, which somehow gets deleted. And I was worried about mail order!

I hate to admit it, but today was one of the hardest days I’ve had in a long time. The pain came on strong and early and my eyesight felt severely impacted. I told Duke how the weekend had gone and they suggested that I get another MRI as soon as possible. I don’t know why that affected me like it did, but it brought on anxiety that I’ve not felt since this began. I prayed and listened to my bible. It was inescapable and I confess I felt like I did right after my surgery.

Finally, God reminded me that nothing had changed. Yes, I had lots more head and eye pain, but that could be a number of things. Since I wasn’t feeling my way into acting, I decided to act my way into feeling. So, I got up, got my sweats on and walked while listening to a CD on prayer and faith. Once again “the peace of God which passes all understanding” (Philippians 4:6-7) was protecting my heart and mind.

Please pray for my MRI tomorrow at 3pm CT and that it is completely clean. Also, continue to pray for relief from head and eye pain. Lastly, pray that I remain confident in God, who really is my refuge and fortress and my very present help in time of need. Without Him I’m not sure what I would do.

It also wasn’t a coincidence that I was listening to Hebrews today:

“Endure hardship as discipline; God is treating you as sons. For what son is not disciplined by his father? If you are not disciplined (and everyone undergoes discipline), then you are illegitimate children and not true sons. Moreover, we have all had human fathers who disciplined us and we respected them for it. How much more should we submit to the Father of our spirits and live! Our fathers disciplined us for a little while as they thought best; but God disciplines us for our good, that we may share in his holiness. No discipline seems pleasant at the time, but painful. Later on, however, it produces a harvest of righteousness and peace for those who have been trained by it.” (Hebrews 12:7-11)

I need a miracle, God specializes in them, pray BIG!

links for 2008-04-26

April 25, 2008

Don Bowen Update: 2008-04-24

April 24, 2008

Well I think the increase to 4mg of decadron twice a day may be helping, though tonight hasn’t been great. so it’s hard to tell for sure. Yesterday was pretty good, pain was low and the eye pressure didn’t happen much. Today the pain was good until this evening. It feels like a vice grip and the pressure it puts on my eyes is painful enough that I frequently have to close and rub them. However, it is much better than piercing headaches!

The new thing this week has been weakness and shakiness. It varies throughout the day. I wouldn’t want to do surgery, but I can pretty safely cut apples and oranges - so far. Every once in a while the weakness forces me to lay down, which I don’t like.

Megan came by for a visit yesterday and we went for a long walk, which was nice. It was helpful, because the new route I’ve started to take outside crosses Allen Road, a busy street. When I walked it Tuesday I almost got hit because I forgot to account for my poor left vision. Don’t ask me how, but I did. It was my daughter’s turn to walk me across the busy street. She cut me some slack and didn’t say, “OK, Dad, give me your hand.” :-)

I had my 21 day blood work done today as part of my first chemo cycle. The counts looked pretty good and no one has called me to say there is an issue. I have my 28 day blood and liver work next Thursday and provided there are no issues I start taking my second round of temodar. Not excited about it, but that’s what I have to do.

Had another long call with UnitedHealthcare today and it went well. Tricia couldn’t have been more helpful and I got a number of the claims cleaned up. One of the big problems is that if they classify a provider as out -of-network and then later reclassify them in-network it messes up all the claims. Isn’t that why we have computers? :-) It does help me keep my phone skills sharp.

Finally got to soaking prayer again tonight and it was very encouraging. The pain and weakness of this past week had somewhat imprisoned me at times and it made me very inward focused. Not only have I been more self-centered, but I wasn’t experiencing joy and that wasn’t helping others around me, especially Eileen. Even in the midst of this there are so many things to be thankful for, if I just look a bit harder.

“For the LORD is good and his love endures forever; his faithfulness continues through all generations.” (Psalm 100:5)

“He must become greater; I must become less.” (John 3:30)

Thanks again for your consistent and faithful prayers. They make all the difference. I wouldn’t make it without them, so don’t stop.

Key prayer needs (besides complete healing and restored sight):

-Freedom from pain

-Sleep!

- No constipation

-Strength, and to lose this shakiness

I need a miracle, God specializes in them, pray BIG!

links for 2008-04-24

April 23, 2008

Don Bowen Update: 2008-04-22

April 22, 2008

Today was actually better. Not near as much pain as yesterday, which is nice, though what is there is pretty distracting. I traded lots of email with Duke today and I’m now up to 8mg of decadron daily. I’m hoping that doesn’t negatively impact my sleep, but Steve did recommend I take Benadryl with my ambien. I’m game.

Did any of you catch ABC World News with Charlie Gibson tonight? They had a story on Duke. There was a 32-year old man from St. Louis who had brain cancer and after his surgery they told him there was nothing they could do for him. he went to Duke and has been getting a vaccine they developed and he’s doing well. Amazing! I came upstairs and wrote all of them a note. Within two minutes one of the guys they mentioned, John Samson, had replied, “These notes make it all worthwhile.” I replied that I was trusting God, but confident He was using Duke to give me another 40 years. Two minutes later came another reply, “We’ll make that happen too!” That is EXACTLY why I chose these guys.

As I mentioned over a week ago, my dad does have prostate cancer. He is meeting with his doctor soon to decide what to do, but leaning toward surgery. They told him he needed to do something within two years. I would have been surprised at that, except for this. My father-in-law was told he had prostate cancer a few years ago. Two years later my mother-in-law found out about it. She had no idea because he had forgotten! :-) Anyway, my dad is planning his surgery around his golf game. Hey, we all have our priorities :-)

Not to be outdone, my mom had cataract surgery today and it went well. I’m glad she did because the other day she asked me when I grew a beard. Oh, about 38 years ago! Get better, Mom, I’ll explain this scar on my head when I see you :-)

Amy came home and told us she was a candidate for Prom Queen. We were all very proud and happy for her. Wait, maybe not all of us. I guess Kelly’s comment was, “I don’t really want you to win because then you’ll just brag about it.” :-)

No walking today, but I did confirm, sadly, that I am terribly out of shape. Not sure if it’s the chemo, all the drugs or the lack of sleep, but doing 15 push-ups was way too hard. Oh, it could also be that I haven’t done anything for years. When I got married I was doing 500 a day. I won’t try to pretend I’m 26 again, but I am newly motivated.

I enjoyed listening through Psalm 70-79 today. My friend Gary had shared Psalm 71 with me last night and I really liked what it said:

“In you, O LORD, I have taken refuge; let me never be put to shame. Rescue me and deliver me in your righteousness; turn your ear to me and save me. Be my rock of refuge, to which I can always go; give the command to save me, for you are my rock and my fortress.”

When the pain causes me to lay down and hold my head and eyes, I go to His fortress and sit in the shadow of the Almighty.

I need a miracle, God specializes in them, pray BIG!

Don Bowen Update: 2008-04-21

April 21, 2008

So much for writing to write every three to four days. Sorry.

Maybe I walked to far today. I wore sunscreen :-) Anyway the pain was very minimal until late this afternoon. This evening it has been pretty bad at times.

Anyway, I talked with Duke about it today and they told me that if the pain doesn’t go down by Wednesday they’d like me to have a spinal MRI.This is to rule out any tumor spread via the cerebrospinal fluid into the spinal column which can cause pain. It is a rare occurrence, but with complaints of neck and back pain that are persistent, they like to have a baseline.

Needless to say I’m not excited about the possibility, but will follow their direction. A spinal MRI is like a brain MRI except that it takes a lot longer because they have to walk all the way down the spine. It could be worse. At least I’m short. I’m also glad it isn’t a spinal tap!

Please pray that the pain does go away by Wednesday. They talked about uping my decadron dosage, so I took the liberty of doing it myself.

I really think a lot of my neck pain is because I can’t get my head comfortable and I’m not sleeping well at night. What I wouldn’t do for a solid 8 hours of sleep. Haven’t had that since before surgery January 7th.

I’m still trusting God completely and He is still my refuge. Why isn’t He taking away my pain right now? I don’t know, but if I knew everything I wouldn’t need to have faith, would I? :-)

I need a miracle, God specializes in them, pray BIG!

Don Bowen Update: 2008-04-16

April 16, 2008

Yesterday we had a visit from my sister Barb. She asked if she would make it into the blog and I was surprised at how excited she was when I told her, “of course.” Not sure how I overlooked getting pictures of my other three sisters, but part of it was because I didn’t have “pictures on the brain” back then :-) Yes, I have four daughters and I had four sisters. Eileen is one of four girls too. Oh, and Brett Favre is number 4 :-)

We reminisced about a lot of stuff and my memory is even worse than I thought!

It was a really nice day here, but I was cold the entire day. Headache pain was minimal until I got to practice for the music this weekend. I was able to sing, and happy that doing so didn’t make it worse. It just didn’t make it better either.

My friend Tamara calls the stuff behind the scenes, like our practice, “making sausage.” So, this is what “making sausage” looks like on Tuesday nights before a weekend service.

There is plenty more “making sausage” time on Saturday before the Saturday night service and I actually enjoy that time more, though it’s all fun.

My next visit to Duke is after my second chemo cycle at the end of May. My appointment is on June 2nd, so Eileen and I will fly out this time. We’ll drive to Chicago and fly direct from there because trying to get connecting flights is just too hard.

I felt good this morning and actually did half of my walking outside. Man was it windy! I would have done it all outside, but I remembered I wasn’t supposed to be exposed to the sun very long and my head, by nature, is always quite exposed :-)

Shortly after I finished eating lunch the headaches started and today has been one of the worst days ever. I still have a headache as I write, but it is more bearable than it was. I would really struggle to function if I had to deal with this every day. It was bad enough that I called Duke and talked to Steve. I asked him if he thought it was being caused by swelling and whether taking decadron (yuck!) again would help. He said he didn’t know, but said there was only one way to find out. He asked how much I had left and I told him I had eight 1mg tablets. He told me to take four right away and then two more in the morning and call him at noon tomorrow. I totally forgot you need to take antacid and eat before you take the decadron. I remembered why pretty quickly :-( Unfortunately it appears decadron isn’t having any impact, but maybe tomorrow things will improve. Singing this weekend will be a challenge, so please pray the headache stops.

I did have some great news this afternoon and it really encouraged me. I talked with UHC about Duke’s in-network status and my registered nurse told me that she saw two claims for my visit to Duke and both were covered in-network and each said, “Thank you for using an in-network provider”! Did I mention that UHC had previously told me Duke was definitely out-of-network? Hmmm, wonder how that happened? :-)

I’ve said this before, but even in pretty bad pain let me repeat it. God is good when things are good and he is STILL good when things are not good. Why does God not answer me immediately when I ask him to take away my headache? I don’t know. Read Psalms and you will hear David ask repeatedly why his cries to the Lord went unanswered. But read First and Second Samuel and you see that God did finally answer. Boy did he answer. I couldn’t agree more with what Peter said to Jesus:

“You do not want to leave too, do you?” Jesus asked the Twelve. Simon Peter answered him, “Lord, to whom shall we go? You have the words of eternal life. We believe and know that you are the Holy One of God.” (John 6:67-6 8)

I need a miracle, God specializes in them, pray BIG!

links for 2008-04-16

April 15, 2008