Archive for May, 2008

Don Bowen Update: 2008-05-31

May 31, 2008

Can you believe May is ending and we are starting June? Amazing how time flies when you are trying to survive :-) But that ends today. Thanks to all of you I am doing more than surviving. I’m doing fantastic and hope to start better reflecting it in my demeanor. I’m not sure if it is the chemo and my tiredness or what, but I’ve been in a kind of a funk for at least a week. My guess is that this is not too uncommon, but I only get to live in my own skin, so I’m not sure. Megan asked me last night if everything was ok and I said yes, but I can see why she asked. She said “You’ve been really quiet since I got home from school.” Truth is I’ve been quiet longer than that. I’ve been acting like a thermometer and not a thermostat, which is what God made me to be.

We leave for O’Hare and our flight to Raleigh/Duke in about an hour. So glad the weather is much better, though I think that is only true of Chicago and not so true of Raleigh. The weather out there is WARM. High 80’s to 90! We actually turned on our air last night for the first time. I could feel the energy bill growing, but it would have been tough to sleep.

I got my MRI results yesterday during my meeting with Dr. Geoffroy. He said the MRI was “stable”, which as I’ve said is their code for “it’s ok.” I actually have a copy of the MRI and the associated report so I read it myself, but had to stop. They essentially don’t know what it really shows. It could be any one of a number of things including necrosis (dead stuff), tumor cavity (from the removal) and cancer. Whatever it is it is no more “enhanced” than it was last time and this is good. I tried to get Dr. Geoffroy to be more encouraging, but it didn’t work. He said, “It won’t stay that way for long. It never does. Eventually it will do something. Get better or worse.” Gee, thanks :-)

This is the very nice looking CD they gave me to give Duke. Much fancier than in the past. However, it may be to make up for the gray-scale images that are on it, instead of color ones I’ve seen in the past.

$2500 just doesn’t buy you what it did two months ago :-) I can see my eyes and my nose. Don’t ask me what any of the other stuff is, but a brain is in there somewhere.

I hope this can be my mantra every day:

“This is the day the LORD has made; let us rejoice and be glad in it.” (Psalm 118:24)

Pray that it will. Every day is a gift. I don’t want to live it like it will be the last, just live it like it is precious, which it is.

I need a miracle, God specializes in them, pray BIG!

Don Bowen Update: 2008-05-29

May 29, 2008

Did I mention that Amy planned for her graduation party to go from noon to midnight? She wasn’t kidding. I decided to turn in before midnight, but her friends, sisters, uncles and cousin went the distance. She got a lot of very nice gifts, but the biggest surprise was a very nice keyboard and stand.

We tried to get her to do a private concert, but she refused. The day was filled with games. Bocci, yard golf and Tripoli. We got a picture of my siblings and as many kids as we could find minus my sister Julie, who came by Monday.

We didn’t get a picture with Eileen’s siblings, but most of them were present when Amy opened her new keyboard, which can be played with headphones! :-)

Eileen’s family stayed around Sunday and we celebrated our nephew Ben’s birthday and played more games. Monday was a pretty quiet day. My sister Julie and her family stopped by on their way back home and incredibly I did not grab a picture! The third time will be a charm.

Tuesday I had my blood work done and it looked pretty good. I had fewer highs and lows, but my white blood cell count was low for the first time. They will do it again next Monday at Duke and that is when they will decide whether I am healthy enough to start my third cycle of chemo.

Yesterday I had another MRI and this time I remembered to request a cushion :-) That made it much more bearable. I don’t know the results yet, but I’m hoping to get a CD copy in the morning, when I meet with Dr. Geoffroy, to take to Duke and it will include a report. Yes, I will peek, though Geoffroy should tell me what it says. I haven’t posted any MRI pics to date, but I might, provided things look good and maybe even if they don’t.

My pain hasn’t been too bad these past five to six days. My right eye has been hurting the most and when it does I just feel like closing my eyes, which makes doing anything a bit difficult. Fortunately it isn’t that often.

Last night we attended 8th grade graduation for Mike and Wendy’s son David. It was good to see Mike’s parents Vi and Terry, even though Vi is quite ill with cancer. They’ll stick around for Daniel’s high school graduation party tomorrow, so we’ll see them once more before they leave.

I’m still only walking every other day. I go for a bit over an hour, but by the time I’m done my feet actually hurt and it takes until that second day to recover. I probably just need to toughen my feet. Or maybe I need better shoes.

I’m looking forward to our trip to Duke. I have lots of questions for my doctor, but the biggest is about my treatment. I like the treatment regimen I’m on now. It appears to be working and taking chemo orally and not having to be stuck with a needle is definitely preferred. However, I chose Duke because they are more aggressive. When I first went out they said they were going to analyze my unstained slides and see if a more aggressive treatment plan would be better. I’ve never gotten an answer on that and hope to on this visit.

I’ll be on a plane again, my first since December 2007, but I am a bit nervous. If my head starts hurting there isn’t much I can do about it. Fortunately it’s a short trip. I won’t be flying first class, which is a bummer. You get used to that. However, my executive platinum status will allow us to avoid any charges for luggage, not that we need a lot going for only two days :-)

I know this video has been around for a while, but I just watched it for the first time myself the other day and had to share it. It is worth the eight minutes, especially from the 3 minute mark when he talks about laminin, the protein molecule. Amazing.

I need a miracle, God specializes in them, pray BIG!

Don Bowen Update: 2008-05-23

May 23, 2008

The past three days have been pretty good. Headache pain has been minimal almost every day and though I’ve been tired it wasn’t so bad that I couldn’t do anything. Hey, maybe the radiation hangover is starting to go away.

When I move on to a new “battle” I sometimes forget to update you on old ones, but it isn’t intentional. You guys prayed and may still be praying for my sleep, well let me tell you, God has answered those prayers in a BIG way! I am sleeping most of the night. In fact, I’m getting up only once now (for the most part) and it’s really nice. No sleep medication at all and I’m sure that has other benefits.

Another answer to prayer has been the constipation. I really love sharing this subject with my 400 closest friends and family, not to mention any who stumble onto this blog. :-) I may still be figuratively full of crap, but I’m no longer literally full of crap :-) Amazing what not taking chemo and decadron can do for you. I’m sure all the fruit and bran I’m eating is helping too.

On Tuesday I got a new power meter installed. My dad got me in this new program offered by our utility company called Power Smart Pricing. With this new meter I’ll be paying per kilowatt hour at a rate that changes every hour of the day. Supposedly I will be saving upwards of 17% per month, which would be very nice.

I was pretty impressed with how fast they came. I registered for it a week ago Wednesday and less than a week later they installed it. Every day they post the hourly rates which will apply for the next day. During the summer the most expensive hours are 1-6pm. So, if you can shift your electrical usage for things like AC, washing machine/dryer, dishwasher, etc. to be done outside that period you will save money. Here are the rates for tomorrow and you can see that avoiding 9am-2pm will save you the most. I’ll let you know if I really save money, but you can be sure I’ll be trying :-) “Honey, could you please do those loads of clothes and dishes at 2am?” :-)

We are having Amy’s graduation party tomorrow. If you are around and want to stop by to congratulate her this is your official invitation :-) The good thing about having events at your house is that stuff gets cleaned, organized, and fixed that otherwise wouldn’t. One of those items for us was the couch in the basement.

That’s my friend Mike fixing one of the two broken pieces of our sectional. Stupid me, I figured people, and I use that term loosely to refer to our children and their friends, would sit on the seat part of the couch. Apparently this is out of style. Instead they prefer to sit on the backs of the pieces. In fact jump up and down on the backs is probably a bit more accurate. In any case, the manufacturers are stupid like me and did not anticipate this. Hence the need for repairs. Fortunately, Mike can fix anything, except the people who broke the couch in the first place. My only comfort is thinking of their having children of their own someday. I’m sure that is giving my parents a great deal of joy as they read about my troubles :-)

I finished listening to Joshua the other day while I walked outside. The last 13 chapters took just a bit over an hour so it was perfect. There are some really cool passages in this book, but I saw something I had somehow missed before. In the last chapter Joshua, now old and ready to pass on, reminds the Israelites to obey God and he reminds them with this statement:

“Now I am about to go the way of all the earth. You know with all your heart and soul that not one of all the good promises the LORD your God gave you has failed. Every promise has been fulfilled; not one has failed.” (Joshua 24:14)

Not one. That is impressive. A loving and faithful God fulfilling his promises to a mostly unloving and unfaithful people. I’m glad we don’t have to earn it, but I am challenged to respond in kind. What an awesome God.

I need a miracle, God specializes in them, pray BIG!

Don Bowen Update: 2008-05-20

May 20, 2008

Sunday the weather was nice for Amy’s graduation. It was actually a bit chilly in the stands as the wind was really blowing, but we had jackets on. There were TWELVE valedictorians! Fortunately not all of them gave a speech and a few did it together. My favorite by far was the two guys whose entire speech was names of movies. It was very clever.

We have two graduated from high school and only two more to go. I’m not anxious to rush it as we now have two in college. I have no idea how we will pay for it, but fortunately Amy will go to Illinois Community College her first semester. Her high school grades and ACT scores were not quite high enough for a scholarship, but if she gets good grades at ICC she can get scholarship dollars to attend Indiana Wesleyan University based on those instead, so that’s the plan.

I can’t believe no one has commented on the video I put on YouTube with me and my friend Dan in the golf cart. I thought it was hilarious, but I guess I’m alone. Here is the link again just in case you missed it the first time.

http://www.youtube.com/watch?v=DAyFrQosA3E

Yesterday I finally walked for the first time in five days! It’s the first time I’ve gone that long since I started walking back in January. I just can’t walk when my head hurts this bad and I feel this weak. I just had to suck it up yesterday and actually felt much better when I finished. Wish I could have done it again today, but the headache just wouldn’t go away. I don’t think doctors here or at Duke know what to do about this so I think I’m just going to have to deal with it. If I can learn how to work and function when I have the headache and weakness I should have a real advantage when they go away and I feel “normal”.

We are having Amy’s graduation party this Saturday. I just learned that no formal invitations are being sent out. So, I realize this is late notice, but please consider this your invitation to stop by. Most graduates have a party from 1-4 or 5-8 - not Amy. Her party is going from noon to midnight! So stop by and say hi.

Read Psalm 20 today and I really like it:

“May the LORD answer you when you are in distress; may the name of the God of Jacob protect you. May he send you help from the sanctuary and grant you support from Zion. May he remember all your sacrifices and accept your burnt offerings. May he give you the desire of your heart and make all your plans succeed. We will shout for joy when you are victorious and will lift up our banners in the name of our God. May the LORD grant all your requests. Now I know that the LORD saves his anointed; he answers him from his holy heaven with the saving power of his right hand. Some trust in chariots and some in horses, but we trust in the name of the LORD our God. They are brought to their knees and fall, but we rise up and stand firm. O LORD, save the king! Answer us when we call!” (Psalm 20)

It’s true that I’ve had more weakness and pain than I would like, but God has been answering your prayers and mine. He has been protecting me and he will continue. Keep praying with me and these side effects will go away.

Here are some upcoming events to also pray about:

May 26 - Blood work for 2nd chemo cycle

May 28 - MRI

May 31 - Travel to Duke

June 2 - Blood work and meet with Dr. V at Duke

I need a miracle, God specializes in them, pray BIG!

Don Bowen Update: 2008-05-17

May 17, 2008

Thursday my pastor Tim Reist took me out for lunch and we had a great time. We always enjoy brainstorming on all kinds of topics, many related to growing the ministries at our church. Tim is one of our primary teaching pastors and in an upcoming message series is going to interview me.

Here we are at Starbucks. It really brought out our creative best. Great time, Tim. Let’s do it again soon!

Thursday night we attended Amy’s Baccalaureate where our senior pastor Cal Rychener spoke to the graduating class about giving it their BEST:

Believe in your God given talents

Excel in matters of character and integrity

Serve others even if your efforts seem small

Trust God to make up the difference

It was a great message and I hope they listened.

Friday was a really hard day. One of my hardest in a while. I was in pain the entire day, even from the night before. The headache I had was just crippling. I ended up in bed most of the late afternoon and all the way until I went to bed. Pain like that makes the day long and very lonely. I was incredibly weak and knew getting up at 5:30 the next morning for golf was going to be difficult. Eileen was worried too and had it been up to her I would have stayed home.

I was right about it being hard in the morning. My legs were very shaky as I walked down the stairs and I could tell I was in for a long day, but I wanted to golf badly. My friend Doug Cheney picked me up first and then we got Jeff Ringenberg and Dan Hittinger, the rest of our foursome and drove to Macomb, IL for the Youth For Christ scramble.

For the first time I didn’t even take a practice swing or putt. I just didn’t have the energy. Dan was an awesome cart mate. He basically caddied for me. He got my clubs out and put them away. It made a huge difference. As promised I did drive, but only for the first few holes. Even that was too much effort. I know, I was pathetic.

My driving off the tee was incredibly bad. I wish I could blame it on my eyesight, but it was worse than that. You know the rule where if you don’t drive the women’s tee you have to pull your pants down? Well, there were stretches where I would have had to leave my pants around my ankles! I got weak enough near the end that I stopped hitting drives altogether and just waited to pitch onto the green and putt. I got to contribute here and there, including a long 30-40 foot putt on the sixth hole, but in general my partners carried me. Dan almost literally :-), but that is the kind of friends I have. Thanks guys. I had a really good time.

Keep praying for relief from all side effects, specifically headaches and weakness.

I need a miracle, God specializes in them, pray BIG!

Don Bowen Update: 2008-05-14

May 14, 2008

On Monday I went to the library with Eileen and they had Pride and Prejudice for me, which I had requested a while back. I was hoping for CDs, but instead I got this:

It works, but is a pain to use. I’ve wanted to read this book for years and am finally doing it. Monday night I fell asleep listening to it and “meditated” on four chapters that I had to re-listen to today. I wanted it on CD so I could put it on my iPod. However, maybe God knew my iPod would fail me on Tuesday. At least I had something to listen to today.

I kept trying to reset my iPod today and it just wasn’t working, so I did the only thing I know to do with electronic equipment when it doesn’t respond. Smack it on the table. Worked like a charm. Will it fail again soon? Probably. Maybe Amy is tired of her new iPod and wants to give me another hand me down? She’s the only one with money. An iPod is now more essential to me than my cell phone.

I actually helped make dinner last night and really enjoyed it. I cut up all the potatoes and carrots, which we cooked on the grill. Me wielding a knife may not be the best idea, but I love cutting up food and didn’t draw any blood. After that I made a huge batch of Rice Krispie Treats. Hey, I didn’t say I was going to be the next Top Chef :-)

Today I finally did walk two consecutive days. It would be good if I could do it everyday, but I’m not always up for it. If it wasn’t so important for my health, OK, my life, I wouldn’t be near as consistent, but it is, so I am :-) The weights I’ve been doing this past couple weeks will hopefully help me not kill myself when I golf this Saturday. We’ll see.

I got to have lunch today with my good friend Dan Ward. Dan and I worked together back at Caterpillar in 1997 when he was doing PKI (remember those days?) and I was building the Global Directory Service.

Dan went to Sun in 1998 and I joined in 2001. He’s still there and one of the hardest working people I know. Thanks for lunch, Dan!

My headaches have been a bit worse these past few days, though there are periods of relief, which make it easier to bear. The headaches concern me less than the sharp pains in my neck, which sometimes extend down my back. Today was my last day of taking decadron so if it continues to get worse over the next four to five days I’ll know I should probably go back on it. I can tell you now that I’ll have to be hurting pretty bad and pretty consistently because I hate that drug and it’s side effects.

Thanks for all the suggestions for addressing my being “full of crap” :-) Cheryl recommended Colace, Sara recommended herbdoc and Laura actually brought me some miralax, which I took and have already seen some results. Thanks!

Eileen and I are trying to get time to read the bible together and when we do we both enjoy it. We’ve been reading Psalms and just use the date to determine which ones. Today is the 14th so we did 14, 44, 74, 104 and 134. I really liked this part of Psalm 44:

“We have heard with our ears, O God; our fathers have told us what you did in their days, in days long ago. With your hand you drove out the nations and planted our fathers; you crushed the peoples and made our fathers flourish. It was not by their sword that they won the land, nor did their arm bring them victory;it was your right hand, your arm, and the light of your face, for you loved them. You are my King and my God, who decrees victories for Jacob. Through you we push back our enemies; through your name we trample our foes. I do not trust in my bow, my sword does not bring me victory; but you give us victory over our enemies, you put our adversaries to shame. In God we make our boast all day long, and we will praise your name forever.” (Psalm 44:1- 8)

It’s all Him and it’s never been clearer to me than in these past four months. I wouldn’t have it any other way.

I need a miracle, God specializes in them, pray BIG!

links for 2008-05-13

May 12, 2008

Don Bowen Update: 2008-05-11

May 11, 2008

I finished my second round of chemo on Friday night and didn’t get nauseous the entire time. Is that amazing? No, that’s God. I did have one small issue on Thursday night where I didn’t drink enough water to get the temodar down, I think. I ended up burping temodar and that was quite unpleasant. I didn’t make that mistake Friday. Now I have 21 days before I have to take anything.

I was hoping to walk more than every other day, but it just hasn’t worked out. The gel pads are really helping my heel, but I can tell it is sore. I’m hoping to do my walking outside a bit more, but the weather hasn’t been cooperating.

I’m golfing this next Saturday for the first time since last year. It should be interesting. Clearly someone else will have to watch where my ball goes. Fortunately we’re playing a scramble. Maybe we’ll use one of my putts. I’m just hoping for a headache free day. I am definitely driving the cart. My friend Dan is usually the passenger, though he may have misgivings this year. I’ve almost killed him a few times when I had good vision so he’s used to it :-)

I’ve had increased pain these past few days and it could be due to my cut back on decadron. I’m now down to .5mg twice a day and hope to stop altogether this Wednesday. If the pain goes up and stays there I’ll know I still need to take it. Pray that it doesn’t. I really want to get off that stuff.

It may have been true before, but it is definitely true now. I am officially full of crap. This comes as no surprise to many of you, but I think I have good excuses. The decadron and temodar are incredibly constipating. However, I’m sure many of my friends will pooh pooh that (get it? :-)) Yes, you can tell me “I told you so” the next time you see me, though I’m hoping to remedy the situation before then :-)

One of the great things about staring your mortality in the face is being reminded about what is really important. You are also reminded about how potentially limited your time is to focus on those important things.

“Show me, O LORD, my life’s end and the number of my days; let me know how fleeting is my life. You have made my days a mere handbreadth; the span of my years is as nothing before you. Each man’s life is but a breath. Man is a mere phantom as he goes to and fro: He bustles about, but only in vain; he heaps up wealth, not knowing who will get it. But now, Lord, what do I look for? My hope is in you.” (Psalm 39:4-7)

Living for the important is hard, but not doing so is foolish. By the grace of God I’m becoming less foolish each day.

Saturday we went to visit our friends from college, the Martin’s, and had a great time. They introduced us to a new game and it was a lot of fun. It’s called telephone pictionary, I think. Here is how it works. We had nine people playing so each person has a stack of nine small sheets of paper. Think 3″ x 4″. Each person starts by writing down some random sentence on the top sheet. I wrote, “Eileen will not be getting diamonds for Mother’s Day.” Clever, huh? You then pass the stack to the next person. They read the top sheet, place it at the back and then draw a picture of what they just read. They have one minute!

The next person looks at the picture, places it at the back and writes a sentence to describe what they saw. And so on until it is back to the person who started it. You then take turns showing your “story”. It’s pretty funny. You hear things like, “Oh, that’s where the little egg came from” and someone else will say, “What egg?” :-) ‘m thinking Wendy will like this because she won’t have to lose.

Sunday I walked before church and I’m glad I did because I haven’t felt that great most of the day. Unfortunately Eileen was really sick this morning and couldn’t even go with us. It didn’t end up being a great Mother’s Day for her so I will have to figure out how to make it up to her.

We had a guest speaker for Mother’s Day who was pretty funny. Julie Barnhill is a speaker and author on Motherhood and had a great message. She used one of her book titles, “Motherhood: The guilt that keeps on giving”. I know my sister Anita loved what she had to say and I could see it affected many of the women.

One of my friends, Beth, from high school is a good friend of Julie’s, so we had that in common. I also talked with her about writing a book. Until I started blogging I hated writing, but I have had many of you encouraging me to turn this into a book. I’m still very skeptical, but am pursuing input from people who know. We’ll see.

While walking this morning I listened to Andy Stanley from NorthPoint Church in Atlanta share his first message in a series on Faith, Hope and Luck called Better Odds. He talks about the fact that all of us have our faith ladder resting against something. Is it something that changes over time or something that will stand the test of time? How about stage four brain cancer? :-) I highly recommend it and hope many of my friends will take the time to listen. It’s only 40 minutes. I can’t wait to listen to the other two messages in the series, Betting On Hope and Beating The Odds, which he’s already delivered. You can subscribe to their iTunes feed here.

I need a miracle, God specializes in them, pray BIG!

links for 2008-05-10

May 9, 2008

Utterz

May 9, 2008
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