In This Update: Macomb Heritage Days, First cycle of new treatment ends, rough week, First Platelet Transfusion,Funnies about having to be treated like I’m 70+
I wish I had immediately uploaded my pictures from Heritage Days in Macomb, but I didn’t and Kelly took the camera on her Chorus trip to Boston. I did have a good visit and felt pretty good most of the time. I got to see friends like Tony Setser and Dave Distefano who I had not seen for a very long time. There just wasn’t enough time to reminisce. Macomb was a great place to grow up. Just one more thing I’m indebted to my parents for having provided.
Last week was pretty tough, which I’m sure you figured out not seeing any updates. My head hurt pretty bad and the pain pills did little to help. I hope some of it was from the chemo pills I was taking on this new treatment. I finished the last IV for cycle 1 last Monday, but still had pills to take every day at lunch until Thursday. I did pretty well for the 14 days of pills and only threw up once. Constipation is still a problem, but I’m succumbing to advertising and actually bought some Activia to see if it can help. I’ll let you know.
I was looking forward to no more needles until the second cycle which starts next Friday. However, that was not to be. Thursday morning I had to get labs according to the treatment protocol. Later that day they called to tell me that I had very low platelets. So low they wanted me to have a platelet transfusion this morning. No wonder I’m not getting enough sleep. I have to get up early every day and get poked with needles. We got there around 9am, but because the blood they gave me, caused me to break out in hives, we didn’t get home until 2pm. Have you ever seen the movie Hitch where Will Smith breaks out in hives and sips an entire bottle of benedryl? It wasn’t near that bad, but my upper lip did swell quite a bit.
I wish I had little video snipets of Eileen caring for me. It reminds me of the apes manicuring each other. She’s always straightening my shirts or tucking something in or picking something off of me. I haven’t seen her put anything into her mouth so maybe that means I’m not slobbering too bad yet :-) It is amazing what I’ll run into if someone doesn’t guide me or hold my hand. I’m pathetic. One of the side benefits of today’s hospital visit was getting to see my nurse Jerrie from OSF 1700. It was no surprise to learn how legendary her reputation is and how much she is loved. I’m so thankful God made people that want to be nurses and give themselves like that. Can you imagine having to stick your own arms?! :-) I can’t.
My dad and brother are coming over to spend a few days with me next week and it will hopefully be quality Father and Sons time. My Mom will join us for part of it.
I have been reflecting a lot this past week on selfishness and how selfishly I have lived my life, by far my biggest mistakes. This is pretty surprising for someone blessed with parents like I was. Unfortunately selfishness produces worse vision than even brain tumors :-) It was a comment from one of my daughters that restored some of my “vision”, but it’s not really the way you want to understand. She wasn’t even saying it to point out my selfishness, but God wastes nothing.
“I am the good shepherd. The good shepherd lays down his life for the sheep.
(John 10:10) I never mean these to be sermons though it is how I hear them from God :-) so I’ll stop there, but if you want “the rest of the story”, feel free to call or send me an email.
I’m still expecting and praying for a miracle, God’s gonna deliver it, PRAY BIG!