In this update: Latest Dr. visit, Treatment plan in place, Wendy wins? Megan heads to CA
I meant to write over the weekend because so much has happened. When we came back from vacation we still hadn’t figured out what to do next for treatment. I wrote that my arms wouldn’t let me do the other clinical trial, but after more thoroughly reviewing my options and talking to Mike it made the most sense to go with what seemed the least attractive because as Mike said, “Now is the time to be aggressive”. For those of you that want more details here is the link to the clinical trial
I personally don’t like reading anything about this illness on the internet so I have Mike and other friends read it for me. I’m not sure how people without someone like Mike actually make it. When you have to make really hard decisions, I mean decisions that deal with life or death – yours, you need lots of wisdom and someone who cares as much as you do about the end result. Mike qualifies big time. My only regret is having to drag him through this. I will be having IVs twice a week, on Friday and Monday, two weeks in a row and then have a week off. We’ll continue to do this as long as it appears to be working.
Want to see what I do while waiting for the doctor to see me?
Hey, I want to get my money’s worth and those are some cool toys 🙂
Here is me signing my life away to get into the clinical trial,explained by Jordan.
You should see how bad my handwriting is, especially since I’m left-handed and can’t see on the left.
After signing up I was off to Saint Francis to have an EKG, Chest X-Ray and a more current MRI. When Melissa finished doing my EKG she said she was going to fax it “across the street” and then call them to make sure they got it.I was really impressed since far too many times simple “across the street communication had not happened and become a real issue. Thanks, Melissa!
I haven’t heard the results from the MRI yet, but I hope to by sometime tomorrow. Pray the head aches I’ve been having are not an indication of any increased growth.
Friday night Liz invited Pam, one of her fellow interns at OSF to some over and they taught her how to play 8-card golf .
Wendy and I played a game of cribbage first and amazingly she won. No, I’m not kidding, she really did. OK, don’t believe me. Later I heard Eileen saying it would never make the blog and I heard Wendy shout, “It better be in the blog!” I couldn’t resist yelling back, “Did we play cribbage tonight?” and Wendy said, “What?!” Mike laughed with me and said, “She makes it so easy, doesn’t she?” 🙂 Yes, she does. I at least got to warn Pam about her.
Saturday morning we took Megan to the airport. She’ll be a counselor at a camp in La Jolla CA until August. She did the same thing last year and we missed her then too.
On Sunday my head was hurting pretty good so I just napped and listened to the last round of the St. Jude Classic. I kept hearing what sounded like a woodpecker and thought I was losing it, but a short while later I finally spotted it above the front door and grabbed this picture. No idea why it kept pecking at the window. Can you see it there on the left?
I’ve been listening to podcasts on marriage by Andy Stanley and Craig Groeschel, which I’d highly recommend, but tonight I went back to Psalms. It’s no wonder God called David a man after His own heart.
Shout with joy to God, all the earth!
2 Sing the glory of his name;
make his praise glorious!
3 Say to God, “How awesome are your deeds!
So great is your power
that your enemies cringe before you.
4 All the earth bows down to you;
they sing praise to you,
they sing praise to your name.”
5 Come and see what God has done,
how awesome his works in man’s behalf!
(Psalm 66: 1-5)